Category Archives: optimism

The total raised during the 2016 tournament is …

12512238_1010611815693978_2112717737119009760_n.jpgOn April 2, PCRF hosted its 7th annual Golf for the Cure for Parkinson’s at Lake Ashton Club in Winter Haven, Florida. Despite thunder storms with heavy rain, the event was a bright spot for us during Parkinson’s Awareness month.

As always, the Lake Ashton community came together to support us and others on this Parkinson’s journey. TeamFox friends from around the state joined us and Sam Fox from the Foundation for our event.

This year was the first year I have fully allowed the entire Harmon family an equal say in event details and planning. Those who know the Harmon ladies won’t be surprised, when I say “I could not have done it without them.” In fact, I should have done it long ago.

This year we had a Marquis Partner, Family Elder Law from neighboring Lake Wales. In addition to expense and volunteer support, they agreed to match 10% of monies we raised for the Michael J Fox Foundation.

Due to the support and hard work of everyone, I am proud to announce that we raised over $48,000 – 100% of these monies will go directly to research by the Fox Foundation.

A true VICTORY! Thank you one and all.

TWO SHOES ON AGAIN

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10 years in, reflections and re-dedication

dadIn a little over a month, I will celebrate the tenth anniversary of my diagnosis of Parkinson’s. Ten years ago, I was working and Cecily was not, and both of our girls were still in college. I was healthy or at least I thought I was, and I was fully engaged in the pursuit of the American dream. Then the doctor’s visit where I heard “You have Parkinson’s disease “which shifted my reality. With Cecily’s help, I was able to adjust to this new chapter of my life.

Parkinson’s has given me an endless task of pills and physical challenges. I am not complaining. I am fortunate that the disease is progressing slowly, but we can’t stop the march of time.

Parkinson’s has also given us a new community that participates in our journey. This community consists of a number of entities. First and foremost of which is a stronger family unit. The Harmon “Wonder Women” have shared the good, bad and the ugly. They are the foundation of our journey with PD.

Second is our friends, new or old. Without them, we are an empty shell. Thirdly is our TeamFox family. They make me laugh and they make me cry with their extraordinary feats and accomplishments. When we meet old Foxes or new ones, there is an instant bonding and understanding. The PD Warriors, whether part of TeamFox or not, make up a strong brotherhood of support and love that makes this journey much easier. Their focus is not on how many times they fall, but how many times they get back up.

So, my time with Parkinson’s has passed quickly. We have not found the cure, yet. We are moving forward. A number of promising research projects are in trials that may relieve symptoms and be almost as good as a cure. But that is not enough. We have lost too many of our fellow warriors, with the passage of time.

Recently, our family joined TeamFox in a 10K at the Disney Marathon weekend. When I crossed the finish line, I reflected on friends who have passed away with PD this year. I realized we are not doing enough. TIME IS OUR ENEMY!

THE TIME IS NOW TO RE-DEDICATE MYSELF TO FINDING A CURE. PLEASE JOIN ME. LET’S END THIS DISEASE.

TWO SHOES ON AGAIN (not running kicks)

Finding partners in Parkinson’s

Look at this crowd of people at the Philly #partnersinparkinsons
Look at this crowd of people at the Philly #partnersinparkinsons
Taking a selfie with the panel for Building connections with community, family and friends!
Taking a selfie with the panel for Building connections with family, friends and community!

Recently, I had the absolute honor to be a panelist at the Partner’s in Parkinson’s event in Philadelphia.

What’s Partners in Parkinson’s? It’s a newish initiave from the Michael J. Fox Foundation and Abbvie to help Parkinson’s patients get the full benefit of a team when it comes to their journey. What’s that mean? Well, you can attend events to learn more about how you can help and about PD in general. Or you could find a new specialist. Or you could get one-on-one support from an advocate.
It’s a really cool tool that I’ve personally be able to use to get someone help finding a doctor in New York from right here in York, Pa.

The Foundation asked me to come out to Philly to be the “adult child” of a person with Parkinson’s on a panel called “Building Connections with Family, Friends and Community.” The goal? To share my story and help these people find ways to get involved or get more information. Most of the people in attendance were either recently diagnosed or have recently decided to get involved.

We had a conference call to prep for the panel, but in the end, we were told to be ourselves (they know better!) and share our stories. Simple enough, right? Well, I got a little nervous on the way.

Continue reading Finding partners in Parkinson’s

Find your moment for hope

The first time this month when my Dad got a hole in one, I was ectastic for him. And about a week later, with the second (his third ever), I thought it was full of it. I really did.

Hole in one No. 3
Hole in one No. 3

Sure, he called me and everyone else in the family to tell us about his success. But on Facebook, it was a different story. He wrote:

Here USA picture of the ball in the hole and me taking it out. I would give up both for a cure to PD. This is nothing compared to Nancy Mulhearn run this weekend. You rock Nancy.

 And a lot of his friends and Team Fox family flocked to Facebook for congratulations.
Jimmy Choi Another one?!? That’s 2 this year no?
Bob Harmon Jimmy Choi in 15 months. Nothing like your marathon history
Debi Daniels Bob Harmon you are one terrific man and we are proud to know you
Nancy Bowie Mulhearn Bob, I think you are the rock star this weekend; I am the background singer! Still seems unbelievable to achieve, but a hole-in-one takes center stage!!! Wow!!! Congratulations!!
Nancy Bowie Mulhearn Actually, shaking my tambourine with a rock band is next on the bucket list…
Jimmy Choi I’d trade the marathons for 1. 10 years ago I was a 2 handicap and I have never had a hole in 1!

Continue reading Find your moment for hope

Two holes in one? Is a Parkinson’s cure next?

Hole in one No. 2
Hole in one No. 2

In 2006, at the age of 57, I was diagnosed with Parkinson’s disease, a chronic, progressive, neurological
disease. That year I retired to enjoy the fruits of over 40 years of work. Like all people who receive life-changing news, I was devastated, but I was fortunate that I had a wise wife. Cecily reacted to the news
in an unexpected way. Her response was “Thank God it is not something that is going to kill you in 90 days. We can deal with this.”
Retirement offered many opportunities to do things you really never had done before. One of those was golf. I had played golf on a very sporadic basis during my life, but not in a way to have a golf swing.
Over the years my game has improved, but I knew that I would only be a mid-handicap player due to rigidity, a major symptom of Parkinson’s, and the hourly fluctuation of symptoms caused by the short efficacy of the medications. Despite the challenges, golf along with other exercise seemed to slow the progression of the disease.
It is every golfer’s dream to make a hole in one. So on May 6, 2013, I was ecstatic to achieve that dream. Of course I celebrated and then went back to playing golf. I was different then before because now I knew I could make a hole in one on any par 3, because I had done it. Being an optimist didn’t hurt either.

Hole in one No. 3
Hole in one No. 3

On September 14, 2014, I was fortunate to make my second hole in one. Again it was a time for celebration. Both holes in one were made on my home two courses at Lake Ashton, but they were on separate courses.
Eight days later on September 22nd we reached the first par 3, my golfing partners were giving me a hard time about since I had gotten a hole in one the week before, why don’t you just do it again. Laughing I stepped up to the ball and hit it. To my surprise it was a good shot, and to our surprise it went in the hole.
Two holes in one in eight days.
The odds of that happening are astronomical, even for a player who doesn’t have Parkinson’s.
I reflected on the accomplishment and tried to put in context. I have spent the last eight years living with Parkinson’s and preaching to all that will listen to keep active, positive and fight the fight. You never know what you can accomplish when you try.

Maybe next Monday they will find a cure for Parkinson’s.

‘Dad, this isn’t about me, it’s about finding the cure’

What a month April was.

We started off the month with the whole family gathering for the 5th Annual Golf for the Cure. For those who remember last year where everyone told me “You did to much,” I made a pledge that I would get more help this year. Well, I lived up to that pledge and was fully recovered two days after the tournament. Thanks to all who helped me carry the load especially my family.

The event once again showed the generosity of the Lake Ashton community. We raised over $47,000 this year, which brings our five year total to over $200,000 (including matches through the Michael J Fox Foundation). The event also had a few surprises for Bob (I hate surprises). Since the event coincided with the MJFF MVP dinner, which we were unable to attend, and members of the foundation were unable to come to our event. Hence the surprise, we received a two-part video with Stephanie Paddock from the foundation and Michael J Fox with a personal message for our community and my family. Due to a production glitch, Emily’s name was left out. When the family told me of the problem the night before two things happened. The foundation went out of their way to send a letter to Em and a picture from Michael thanking her during MVP. But the best thing that happened was Emily’s immediate response. She said: “Dad this isn’t about me, it’s about finding a cure.” Boy, does she get it or what.

At the end of the month the local newspaper ran an article about our efforts in the community. It is an honor to be chosen for the piece, and I am somewhat embarrassed by the attention. The upside is our journey was exposed to almost 70,000 readers, and it was Parkinson’s Awareness month after all. As I was reflecting on the month and being “out there,” I thought of Emily’s comment and everything fell into place.

This isn’t about me. It’s about finding the cure

So, thank you again to all those who helped us, all of the donors, and to the Lake Ashton community, you are part of the effort to Find the Cure. Thank you Emily for reminding me of the lessons we have previously learned.

TWO SHOES ON AGAIN

How much did Golf for the Cure bring in …

Did you see who Team Fox featured on Inspiration Monday?
Did you see who Team Fox featured on Inspiration Monday?

I just wanted to share this photo of Dad with you all and tell you some big news.

So there are still some checks and dollars to be counted, but the 5th Annual Golf for the Cure for Parkinson’s Disease has raised MORE THAN $45,000 for the Michael J. Fox Foundation.

SAY WHAT?

That’s right. Thanks to your support, our sponsors and the Lake Ashton community, in five years, you’ve helped us raise more than $200,000 for the foundation to help find a cure.

I interviewed a mother today, who was diagnosed less than a year ago with PD. She was talking to me about why we do this. Why we fundraise. Why we participate in clinical trials. And she said:

“Maybe more moms at the age of 42 won’t have to look at their kids and say this is going to be a long road, but we’re going to just fine.”

Thank you, thank you, thank you. For being a part of this goal and our journey. We seriously could not do it without each and every single one of you.

Our words are a gift

Photo collage from donttouchheart on Instagram done by Daily Record/Sunday News
Photo collage from donttouchheart on Instagram done by Daily Record/Sunday News

A few weeks ago, my friend who writes for our paper sent me an obituary he saw in the Hanover paper. I read obituaries every day looking for “news stories” and this one had a link in it. It was for a 28-year-old woman and had a link to her blog.

It starts out:

As many of my friends on facebook know, I was thinking about having a new outlet to let out some of my feelings through my journey with cancer. I was worried about a few details with this — one being I am a poor writer. I am not kidding when I say this — I am worst then a skier with a fear of snow. Each post will take me a very long time — so I ask you to please ignore the poor grammar and style that I have.
I hope this can provide something as insight to my friends and maybe guide others who are going through the same thing that I am. Either way I am going to give this my best shot.
— April 29, 2013

I knew from that moment that this was going to be a powerful story (turned out to be the best he’s written in my opinion) and one with am important message I try to reinforce with my family and you — the readers of this blog.
Continue reading Our words are a gift

Apathy the silent killer

I know that apathy is typical in PD patients. It has always driven me crazy when I see my fellow journiers (I made this word up, but it works for me) not being aggressive or active in pushing the beast back. Last week, I told Cecily that I was “losing traction” on our sponsor relationships for our fifth golf tournament. She reminded me of the great year we had in 2013 and we don’t always have to be better. It sounded un- American. Don’t we always strive to do better?

So I sat on my ass for a day and reflected. I came away conflicted but directed. From a fundraising standpoint, I am comfortable in knowing the generosity universe in a small community has a limit. Re-energized I caught up on my tournament timeline. Some pluses, some minuses … but every contribution regardless of historical numbers means so much. So to all of us on the money train of charitable efforts,  DO YOUR BEST AND FORGET THE BUDGET AND HAVE FUN.

From the health side, (apathy or even depression) not every day is “fantastic,” but is a day to make the best out of. Actually every day should be fantastic, because we are blessed to have it and there are not promises for tomorrow. Do we feel good everyday? No. But it is like golf. It is not how good your best shot is, it is how much good you can do with a bad shot.

So if you find me sitting on my ass and apathetic, kick me in the ass. Just don’ t kick my foot because it may be already on the way to my own ass. For anyone out there who loses their drive to take the best out of what we have, take heart. You are not alone. Together we will move forward.

TWO SHOES ON AGAIN, as soon as I can get it out of my ass.

York: Where do we go from here?

Want to help me make this year's Pints for Parkinson's better than last? (Photo by John Ryan)
Want to help me make this year’s Pints for Parkinson’s better than last? (Photo by John Ryan)

I could give you lots of excuses about where I’ve been instead of blogging, but they’re just excuses. Work has been busy, life has been busy. Yadda yadda yadda.

Instead, I’ll just jump right into what’s been bouncing around in my brain lately — this year’s Pints for Parkinson’s.

I want to be bigger and better this year, and I’m struggling with direction. So I ask you: friends, family , York …

Where do we go from here?

I’ve thought about upping the ante and making the event into more of a bar crawl with several bars all in walking distance (if the bars will play ball). I’ve thought about what I could do to raise more money — raffles, auctions, more music, art, etc. Then there’s the whole idea of reaching out to find more people. Then my brain gets a little overwhelmed and I worry that I can’t do it. That maybe I can’t raise more than $3,000. What if it was just a one-time deal?

But I refuse to let that stop me. If my Dad and my friends can get up daily to fight PD, I can deal with a little fear of failure. So what should I do to make this year’s Pints for Parkinson’s better?

Yes, I would like to raise more money. But what’s the most important thing to me is increasing our impact. How do we find those people who need to know about Parkinson’s? Or find those people who think they’re alone dealing with PD? How do we find them, get them through the door and tell them they are not alone? It’s a question I’ve posed before on this blog.

Hit me up with your thoughts. I’m open to all ideas.