Tag Archives: clinical trials

Let me tell you a little story about my Mom

1519599_698695746830758_1959666373_oA little while ago, The Michael J. Fox Foundation asked me to interview my Mom for a newsletter about the PPMI study that she’s involved in.

They wanted the personal touch of a mother and daughter talking about why my mother is so awesome and involved. (OK, so maybe the author is biased. Just a tad.)

In the end, I wrote a novel, so only a small part appeared in the newsletter. See the whole piece below.

Fall 2014 Newsletter
Continue reading Let me tell you a little story about my Mom

Meet Roy and Lynn Roden

Lynn and Roy Roden biked across the country in the PD Challenge.
Lynn and Roy Roden biked across the country in the PD Challenge.

For 25 years, Roy got diagnosis after diagnosis, surgeries, and nothing worked. Nothing happened. The tremor remained. Five years ago, at the age of 50, doctors got it right: Parkinson’s. In that moment, Roy found relief. “I was so frustrated for so long without knowing what was wrong,” he said. But now he had a name. “Immediately I wanted to know what I could do. I wanted to have fun with it.”

Since then, life has taken a drastic turn. Roy laughs when he says he used to have it all: the Porsche, the penthouse, and Harley. And he sold it all and went on a ride with Parkinson’s.
Continue reading Meet Roy and Lynn Roden