Tag Archives: team fox

10 years in, reflections and re-dedication

dadIn a little over a month, I will celebrate the tenth anniversary of my diagnosis of Parkinson’s. Ten years ago, I was working and Cecily was not, and both of our girls were still in college. I was healthy or at least I thought I was, and I was fully engaged in the pursuit of the American dream. Then the doctor’s visit where I heard “You have Parkinson’s disease “which shifted my reality. With Cecily’s help, I was able to adjust to this new chapter of my life.

Parkinson’s has given me an endless task of pills and physical challenges. I am not complaining. I am fortunate that the disease is progressing slowly, but we can’t stop the march of time.

Parkinson’s has also given us a new community that participates in our journey. This community consists of a number of entities. First and foremost of which is a stronger family unit. The Harmon “Wonder Women” have shared the good, bad and the ugly. They are the foundation of our journey with PD.

Second is our friends, new or old. Without them, we are an empty shell. Thirdly is our TeamFox family. They make me laugh and they make me cry with their extraordinary feats and accomplishments. When we meet old Foxes or new ones, there is an instant bonding and understanding. The PD Warriors, whether part of TeamFox or not, make up a strong brotherhood of support and love that makes this journey much easier. Their focus is not on how many times they fall, but how many times they get back up.

So, my time with Parkinson’s has passed quickly. We have not found the cure, yet. We are moving forward. A number of promising research projects are in trials that may relieve symptoms and be almost as good as a cure. But that is not enough. We have lost too many of our fellow warriors, with the passage of time.

Recently, our family joined TeamFox in a 10K at the Disney Marathon weekend. When I crossed the finish line, I reflected on friends who have passed away with PD this year. I realized we are not doing enough. TIME IS OUR ENEMY!

THE TIME IS NOW TO RE-DEDICATE MYSELF TO FINDING A CURE. PLEASE JOIN ME. LET’S END THIS DISEASE.

TWO SHOES ON AGAIN (not running kicks)

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Supporting the cause by supporting a new Team Fox family member

Lately I’ve felt like I haven’t really been contributing much to the cause. I find myself in more of a background role, itching to get started again on a new Parkinson’s project.

Emily and I went up to Morristown, N.J., recently for a friend’s fundraiser, and I was telling Stephanie, from the Michael J. Fox Foundation how I was feeling. She reminded me that in supporting those people and getting others involved in the cause, I’m still doing something amazing.

The next week, I really got to see this in action at the Philadelphia Marathon. And I’m so grateful.

Continue reading Supporting the cause by supporting a new Team Fox family member

A childhood friend leads to a Team Fox run

Here's Mom and Des!
Here’s Mom and Des!

A few years ago on my mother’s birthday, she found one of her long-lost childhood friends on Facebook. Needless to say, she was really, really excited.

So imagine just how excited she got when that friend and her husband ended up moving about 40 minutes away. Since then, Mom and Dad have spent a lot of time with Desiré and her husband, Jack.

That lifelong friendship took another huge step forward recently when Jack announced he would be doing the Tri Rock Triathlon in Clearwater for Team Fox in my dad’s honor. Talk about friendship, right? Jack also had an uncle who battled Parkinson’s.

Take a look at Jack’s page, and please feel free to donate to the cause.

My name is Jack Foard. My good friend Bob Harmon has Parkinson’s.
Since his diagnosis some years ago Bob has given everything he has to do battle with the disease, but not just for himself, he has been fighting for every single person and every single family afflicted by the disease. In my own family, a dear uncle, Ted Bell lost the fight a few years back.
Bob has raised ten’s of thousands of dollars for Team Fox, funding worldwide Parkinson’s research. As the hundreds of people Bob has personally helped deal with the disease will tell you, Bob lives a full life made fuller by focusing on others.
Today I am focusing on Bob. I’m pulling my 67 year old body into shape to finish this sprint triathalon hoping that folks like you, folks who want to win the race against Parkinson’s will give a few bucks in Bob’s honor (or in honor of a loved one.)
I’m swimming, biking and running (walking actually) to honor Bob Harmon and the selfless way he has helped anyone and everyone touched by this cruel disease. And for Uncle Ted, a dear man and a fine athlete in his day. And for you and your loved ones too. The dollars you pledge today will be responsible for the improved treatments of tomorrow and someday the cure. Thank you so much for taking the time to make a pledge now.

Dad, Mom and Emily will be there as Jack raises money for his uncle, my dad, and all of you fighting this cause with us.

‘Dad, this isn’t about me, it’s about finding the cure’

What a month April was.

We started off the month with the whole family gathering for the 5th Annual Golf for the Cure. For those who remember last year where everyone told me “You did to much,” I made a pledge that I would get more help this year. Well, I lived up to that pledge and was fully recovered two days after the tournament. Thanks to all who helped me carry the load especially my family.

The event once again showed the generosity of the Lake Ashton community. We raised over $47,000 this year, which brings our five year total to over $200,000 (including matches through the Michael J Fox Foundation). The event also had a few surprises for Bob (I hate surprises). Since the event coincided with the MJFF MVP dinner, which we were unable to attend, and members of the foundation were unable to come to our event. Hence the surprise, we received a two-part video with Stephanie Paddock from the foundation and Michael J Fox with a personal message for our community and my family. Due to a production glitch, Emily’s name was left out. When the family told me of the problem the night before two things happened. The foundation went out of their way to send a letter to Em and a picture from Michael thanking her during MVP. But the best thing that happened was Emily’s immediate response. She said: “Dad this isn’t about me, it’s about finding a cure.” Boy, does she get it or what.

At the end of the month the local newspaper ran an article about our efforts in the community. It is an honor to be chosen for the piece, and I am somewhat embarrassed by the attention. The upside is our journey was exposed to almost 70,000 readers, and it was Parkinson’s Awareness month after all. As I was reflecting on the month and being “out there,” I thought of Emily’s comment and everything fell into place.

This isn’t about me. It’s about finding the cure

So, thank you again to all those who helped us, all of the donors, and to the Lake Ashton community, you are part of the effort to Find the Cure. Thank you Emily for reminding me of the lessons we have previously learned.

TWO SHOES ON AGAIN

Where have we been?

I know, I know. No one likes a blog post that starts off … Sorry for being MIA lately, but. And here it is. There are plenty of excuses of where I’ve been, what the family has been up to, etc. But what it comes down for me personally, is that work has been insane and I’ve been missing out on my PD family.

Let me catch you up with what’s been happening.

Meet the Vanek family: Emily, Sherri, Ben and Michael
Meet the Vanek family: Emily, Sherri, Ben and Michael

Recently, I had the honor of interview the Vanek family for the Michael J Fox Foundation’s blog. The dad, Michael, has PD and is participating in every trial he can. It was seriously one of my favorite, if not my absolute favorite story I’ve written for the blog. Why? Honestly, I’m not sure. But I think it has to do with the innocence of the children in the family.

Little Ben, 6, goes to bed every night praying that “daddy’s Parkinson’s” go away. He doesn’t know what that means really. Nor does he understand that his dad is playing an active role in the cure.
Continue reading Where have we been?

Spread the word! It’s almost time

We’re a month away from the 5th Annual Golf For the Cure for Parkinson’s Disease! 

Check out the press release I typed up for local media, and head over to Dad’s Team Fox page if you’d like to donate. 

It could have been easy in 2006 for Winter Haven resident Bob Harmon to let a diagnosis of Parkinson’s disease consume him. Instead, it did not only the opposite for him, but for his family and many in the Lake Ashton community.

 

It started as a tremor in his pinky finger in 2004,  that turned into trouble eating cereal without spilling. Then his gait changed. After seeing a neurologist, it was confirmed, Parkinson’s. On his way back to work, he called his wife, Cecily, who said “Thank God it’s not something that will kill you in 90 days.” Not only has it not killed him, but it’s inspired him to mentor others, start a support group and raise more than $150,000 so far for the Michael J Fox Foundation.

 

In doing so, Harmon has spread the word of the disease known by many to affect old the elderly and some famous people Muhammad Ali and Michael J Fox. In 2009, Harmon held the first Golf for the Cure for Parkinson’s Disease in the Lake Ashton community. More than 200 golfers mostly from inside the community packed the two golf courses for a day of golf followed by a luncheon and auction. It became a packed, annual event and in its fourth year, the community helped Harmon raise more than $50,000 for the cure. In 2013, the tournament was in the top 20 fundraisers for Team Fox, the grassroots fundraising arm of the Michael J Fox Foundation.

 

This year’s tournament — the 5th Annual Golf For The Cure For Parkinson’s Disease — will be held Saturday, April 5 at 8:30 a.m.

 

Along with his fundraising efforts, Harmon created and facilitates the Lake Ashton Outreach/Support Group and Parkinson’s Cure Research Funding, his own nonprofit. The support group, which he runs with the help of his wife, is open to the general public to provide support to Parkinson’s patients and their care partners. The group meets on the first Friday of the month. Bob and Cecily are also involved in clinical trials, which they found through Fox Trial Finder, the Michael J Fox Foundation’s online clinical trials matching tool. Their twin daughters, Emily and Kate, are also signed up. Emily and Kate also raise money for other Parkinson’s efforts, and Kate writes for the Michael J Fox Foundation.

 

This year’s tournament will prove to again be a labor of love and hope as the Harmons, the Lake Ashton community and their friends come together to help raise money as they joke on the course. Bob has said he’s not sure a cure will come in his lifetime, but his efforts and those of the Winter Haven-Lakeland community will be a part of bringing that cure to those just like him.

A very special Christmas gift

It was really hard for me to contain myself this year when it came to a Christmas gift for Dad. I came up with the idea of making a book full of photos of his (our) Parkinson’s journey.

I reached out to a handful of our closest Team Fox friends to add their words of what Dad means to them.

Needless to say, it was a giant hit.

Dad spends so much time doing things for others and making sure they aren’t down. I wanted to do everything I could to show him that he isn’t alone either. That all of these people are ready and able to help pick him up when he’s feeling down, too.

Best gift ever. Take a peek.

Click here to view this photo book larger

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